What is your purpose of joining a support group on Facebook? I know it’s a strange question but I’m really asking…
Many months ago I joined 2 or 3 Fibromyalgia and Chronic Illness support groups and I just find them to be kind of downers… I mean, I get that people need support and turn to these groups to be lifted up. But when I see my entire feed filled with sad stories of things in life that aren’t going right (like anyone really) and then the story ends with something along the ones of “and now I’m in a flare” or “so it’s not really Fibro related but I need prayers” or something like that…. I don’t know… It just feels more to me like councelling with a fibro spin on it.
Some of these groups have hundreds of members and it just gets to be a lot of negatively. I’ve narrowed it down to one group now and I often think of leaving that too. I think what’s gets to me is a comparison with other groups I’ve joined.
For example, last year I joined a running group when I was training to run a Half Marathon and although I am not currently running, the people in the group are just infectious with inspiration. I still enjoy seeing the posts, the accomplishments, the struggles, the support and comraderie. It’s what I think of when I think of support group. I know there’s a big difference and Fibromyalgia isn’t and can never be fun but I don’t think running is fun either.
Maybe I’m just different in what I think I need. I’m not trying to judge others, they need these groups the way they are I’m sure. I would just really like to find a Fibromyalgia or Chronic Illness group that has a focus on inspiring accomplishments and positive things to spite an illness that we can’t control.
If you know of such a group, I’d love it if you’d share it with me so I can check it out. I want to communicate with people who have a certain level of understanding of what I go through and who give off a positive vibe as a whole.
Does a group like this exist?